Adjusting to life with a Colostomy Bag

As you may well know, If you follow me on social media or on the blog, that at the end of last year I underwent surgery to have a tumour removed from my bowel. Because of the site of the tumour I had to have my rectum removed which results in me having a bag for life. Now out of hospital I am adjusting to living with a colostomy bag.

I haven’t made too many public appearances yet as I am still weak and recovering from the surgeries that I had. I have had a little walk around the local supermarket and I did have a little mishap of wind but As I was layered up with clothing the sound was muffled and it was probably just me that noticed the noise.

The stoma at the moment is very noisy and can be very embarrassing. It sounds like a balloon that has been deflated and let off. The boys have got used to it now but still find it hilarious that Mummy has a bottom on her tummy and that I poo in a bag.

I am conscious of it being seen under my clothing as I my tummy is quite swollen at the moment and sticks out a bit. It can be seen if it isn’t tucked into the trousers and does make a rustling sound against my clothing as I am wearing loose tops. I am worried about others noticing it and the comments that will come. Some people can be blunt with their words and not think of your feelings. Some people can be damn right nasty and make jokes of wearing a colostomy bag. Yes, I am embarrassed but on the other hand I know that it has possibly given me a life.

The results of the tumour and lymph nodes biopsy, once taken from me, has come back negative. No cancer cells left behind. That’s not to say that they haven’t escaped to else where in the body and I will not know this until I have a full body scan. I am extremely worried about this and on one hand I don’t want to find out. I don’t want to go through it all again. I had a shit 2016, especially the last 6 months. My family and my life has been put on hold. We have had to cancel plans, holidays, days out and adjusted to life with Cancer. During my treatment, I spent weeks laying on the bed due to the skin breaking and becoming sore. The last two months I have been in hospital. It all seems to be a dream, a nasty dream.

The only way now is not to dwell on what could have been but what can be.

I need to get some more confidence in myself and say ‘Sod you’ I need to be comfortable with my body in order to go about life as I was before.

I have already began to think about what type of clothes would be ideal to wear with the colostomy. I have bought a few items of clothing in the sales, a few long cardigans, over sized jumpers and loose-fitting tops. I am fully aware, constantly, of the bag and am hoping that once I become more confident with it then it will just become part of me and once in a routine it will become an everyday routine that won’t stop me from having an active, social lifestyle.

It has taken a while for the bowel to fully function properly and is still finding its place in the abdomen after being prodded and poked about with during surgery. Certain foods are giving me wind, which is very uncomfortable and painful. I have no control no more of my bowel habits, when it happens it happens. I am concerned that it will happen when I am out amongst other people who do not know my situation. I am scared of the reaction from people. I am aware that the bag can be seen through clothes and I am anxious of the stares, the glares, the pointing and the comments that will come. I know I can’t be in the comfort of my home for ever, I have to return to work and I have a life with the boys to get on with and I have friends to be social and enjoy company with. I am hoping with time that I will become less conscious and more confident. After all it is still early days, I only had the surgery on the 9th November and have only been home for 2 weeks now. With the support of my family and friends I know I can do this and that I will get my life back on track.

2 thoughts on “Adjusting to life with a Colostomy Bag

  1. I hope 2017 would be more positive for you and full body scan will show no sign of cancer. Stay positive, you survived all these struggles! it will of course take a while to adjust to the bag but as I have mentioned before I’ve seen a lady running around with it like it doesn’t bother her, it takes time of course. Al the best!

  2. bless you lovely, you will get there, it is early days and such a massive life change, there are lots of help groups who have a wealth of personal experience of what you are going through as you probably know, I do hope you have had a nosy as they can and will boost your confidence no end. I have seen phtos of people wearing bikinis etc whilst wearing a bag, you might never get back to the bikin stage but I am hoping you get to that level of confidence in whatever you wear. I am sure that less people than you think will notice that you have one, its more likely to be because you are still very new to it and raw to the situation that you can see it whatever you wear. Be very kind to yourself! you deserve it x

Leave a Reply